I went to the ER at the end of October 2013. This was the second ER visit in 2 days. Another hospital sent me home and told me that my migraine, which I had for 4 days, was causing numbness from my upper lip to my fingers and toes. I was not walking very well and the pain that was in my lower back and in both legs was debilitating. My husband pushed the wheelchair up to the ER check-in window and as we explained the symptoms to the woman behind the glass she introduced herself as a neurologist (wish I remembered her name) and rushed us back to a room to begin testing. They started the process of admitting me immediately but due to the busy time there were no beds. I spent 8 hours in emergency, I am not complaining, and was taken up to the first bed available to wait for another bed on the right floor. When that next room on the 4th floor became available they moved me and also diagnosed me with Guillain Barre Syndrome (GBS). I could no longer stand and could not feel anything from the waist down. The upper body, arms and face were numb at that point and then everything went black.
The next thing I remember was waking up in ICU but I couldn't communicate. I went through IVIG which slowed down the progression enough for them to start plasmapheresis treatments. Everybody was wonderful from my nurses to pulmonary to EVS I was treated with dignity and respect. When I left ICU I went to 5.2 and then finally to 5.4 until my discharge on Thanksgiving. It was on those floors that I remember the most and will forever be grateful for the care that I received. Dr. O, Dr. Wolff, Dr Peters, Dr. O'keefe, Dr. Zevi (just to name a few) made sure my care was outstanding. The nurses and the aides were incredible from those floors and made me feel better about being away from my family as long as I was.
While in rehab on 5.4 I met some of the most personable, caring people. I was able to be myself during just about my entire stay and didn't feel judged. I could not imagine that I would have gotten this far without any of them but my physical and occupational therapists were second to none and I think about these girls everyday. I hope I get the chance to do this in person but I want to thank all of them for fighting for me even when I couldn't or didn't want to for myself. I am still out of work with pain and numbness under the care of a neurologist and going to physical therapy. I have retired my walker and presently get by with a cane but for those who know me also must know, I will not settle for this, so I continue to fight until I don't have to. Thank you L+M for employing greatness, if not for this I would not be here today.